Congenital heart disease (ACHD) in adults is a fast expanding and often underserved population that poses significant difficulties for cardiology patient care. Presenters in the online video CME course Cleveland Clinic Comprehensive Lifetime Care of Adult Congenital Heart Disease discuss the most recent developments in congenital abnormality morphology, both clinically and scientifically.

The most effective management techniques and diagnostic methods are the main topics of evidence-based lectures. You receive ongoing medical education that enhances your capacity to:

Examine the possibilities for right ventricular outflow tract reconstruction, including hybrid, interventional, and surgical procedures as well as clinical evaluation.
Adults who had Fontan surgery should be evaluated and managed, with special attention to imaging, available treatments, the timing of valve operations, Fontan conversion, and heart failure medicines.
Examine and manage individuals with liver illness linked to Fontan syndrome.
Acknowledge the barriers that patients and society see as impeding the diagnosis and ongoing care of acute coronary syndrome (ACHD).
Describe the intricate web of care surrounding adult congenital heart disease and how new guidelines might affect treatment in the future.
Learning Goals
After completing this task, the individual will be capable of:

Provide a brief overview of the most recent advancements in the assessment of right ventricular outflow tract reconstruction for adult congenital heart disease patients, including clinical assessment and interventional, surgical, and hybrid alternatives.
Explain the advancements in techniques for the evaluation and care of adult patients who have had Fontan surgery, covering imaging, available therapies, the timing of valve operations, Fontan conversion, and heart failure therapies.
List the available options for the diagnosis and care of patients with liver disease linked with Fontan syndrome.
Describe the challenges that patients and society see as impeding the diagnosis and ongoing care of adult patients with congenital heart disease.
Describe the intricate web of care for adults with congenital heart defects and how new guidelines might affect it in the future. TOPICS / SPEAKERS
Using ACHA as a Platform for Patient Connections and Accrediting ACHD General – Mark Roeder

Guidelines for ACHD – Karen Stout, M.D.

David Highfill, LCSW, and Amy Basken, MS, served as moderators for the patient experience panel and video.
Terese Quarino, Jane McMaster Thornton, and Robin Davis are the patients.

Moderators: Joanna Ghobrial, MD, MS, and David Highfill, LCSW, led a panel discussion and Q&A.
Panel: Tara Karamlou, MD, MSc, Karen Stout, MD, and Mark Roeder

Personalized Computational Cardiac Models for the Pulmonary Valve (TOF and Other Lesions) Ventricular Arrhythmia Risk Prediction in Repaired Tetralogy of Fallot – Natalia Trayanova, Ph.D.

Tara Karamlou, MD, MSc. Tetralogy of Fallot: RV Remodeling and PVR Timing

Managing More Than Four Arrhythmias with Tetralogy of Fallot – Akash Patel, M.D.

Interventions using Transcatheter Pulmonary Valves – Joanna Ghobrial, MD, MS

Keynote Address by Vaughn Starnes, MD: Adult Congenital Heart Disease: Past, Present, and Future

Vaughn Starnes, MD, and Lars Svensson, MD, PhD, have a fireside chat.

Sanjeeb (Sean) Bhattacharya, MD: Single Ventricle Particularly Fontan Outpatient Evaluation and Medical Therapy

Following Fontan Procedure Surgery – Edward John Hickey, M.D.

Echo, CT, MR, and 3D printing imaging services provided by Justin Tretter, MD of Fontan Imaging

Jeremy Moore, MD – EP – Arrhythmias in the Fontan Patient

Koji Hashimoto, MD, PhD – Assessment of the Failing Fontan Liver, When to Transplant the Liver, When to Perform En-Block Heart and Liver Transplantation

When Should Advanced Heart Failure Treatment Begin? Are We Waiting Too Long? – Dr. Edward Soltesz, M.H.

Fontan Patient Follow-Up: A Nurse-NP Perspective – Nicole Rush, NP

Sanjeeb (Sean) Bhattacharya, MD; Edward John Hickey, MD; Justin Tretter, MD; Jeremy Moore, MD; Koji Hashimoto, MD, PhD; Edward Soltesz, MD, MPH; Nicole Rush, NP; Tara Karamlou, MD, MSc; and Natalia Trayanova, PhD moderated the panel discussion and took questions.

Medical and Surgical Remedies for RV and LV Failure
Is There Any Data on Medical Therapy for Systemic RVs in the Case of Pulmonary Hypertension? – Dr. Miriam Jacob

Rukmini Komarlu, MD evaluates the systemic AV and RV valves.

ACHD: Mohamed Kanj, MD – ICD or No ICD

Surgical Pearls: VAD in the Systemic Right Ventricle – Edward Soltesz, MD, MPH

Tara Karamlou, MD, MSc. ccTGA Physiologic Repair vs. Anatomic Repair: Is Adulthood Too Late for Anatomic Repair?

Surgical Techniques to Re-do the Aortic Root or Challenge the Small Aortic Root – Hani Najm, MD, MSc

Issues with Adult Congenital Heart Disease: Advances in Clinical Practice and Investigations Genetic Testing in Adult Congenital Heart Disease – Joseph Liu, MS, LGC

Novel Approaches to Bicuspid Aortic Valves and Aortopathy • Beka Bakhtadze, MD, Presents Her Case
• Justin Tretter, MD, in imaging
• Joanna Ghobrial, MD, MS, Intervention
• Tara Karamlou, MD, MSc, is a surgical (reimplantation in bicuspid valves) specialist.

Challenging – Atrioventricular Valves and Ebstein’s
Presenting the Case of Nandini Mehra, MD
• Margaret Fuchs, MD, in imaging
• Vaughn Starnes, MD, in surgery
• Joanna Ghobrial, MD, MS, Interventional Approaches

Ozaki and Ross: When, For Whom, and How Long Does It Last? • William Frankel, MD, Case Presentation
• The Ross Method — Dr. Ismail El-Hamamsy, Ph.D.

AAOCA in Adults: A Wholesome Method for Assessment and Care • Thomas M. Das, MD, Presents a Case
• Joanna Ghobrial, M.D., MS, in imaging
• Hani Najm, MD, MSc, in surgery
• Tara Karamlou, MD, MSc, CCF Outcomes

Ismail El-Hamamsy, MD, PhD, Hani Najm, MD, MSc, and Tara Karamlou, MD, MSc are on the panel for discussion and Q&A.

Special Topics in the Arc of Care for Animesh (Aashoo) Tandon, MD, and Amber Khanna, MD: Groundbreaking Research Trials and Studies

Socioeconomic Disparities and Adult Congenital Heart Disease – Keila Lopez, MD, MPH

Justin Lappen, MD: Reproductive Considerations for ACHD Patients in 2023: Implications in a Restrictive Climate

Sports and Congenital Heart Disease – Michael Emery, M.D.

Original Publication Date: June 1, 2023

 

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